Hi I'm Katrina, wife to Colin, mom to Kristina, Brant, and Owen. This blog was created to keep family and friends updated on the goings on in our lives ... the joys and challenges of raising three children. You will often see me posting about Down syndrome awareness as our son Brant has Down syndrome.
We took Brant to the GI specialist in Vancouver yesterday. The traffic was pretty good but it's a long trip no matter which way you look at it and I always am so exhausted afterwards and the next day. The doctor said that looking at Brant he is certain Brant has celiac based on the symptoms and physical characteristics Brant has as well as the high blood test results (over 200). So he is not ordering a biopsy and told us to continue to keep Brant on the Gluten Free diet and to come back in 2 months for a followup (he wants Brant to get his blood checked at the lab 10 days before the appointment). While we were there he listened to Brant's chest and looked in his ears and discovered he has an ear infection in his left ear so he prescribed some antibiotics. I had no idea since Brant hadn't complained about it.
So that's about it. Brant has celiac and will be on a GF diet for his whole life. I guess we'd better get used to it!
Friday, January 23, 2009
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2 comments:
If your son has celiac disease or gluten intolerance, the rest of your family should be screened for the disease. Celiac disease can be present even without symptoms, yet can be doing significant damage. I applaud your doctor for not subjecting your son to a biopsy and recommending continuing the gluten free diet.
Yes, my husband and I are planning to be tested. The GI specialist did say though that since Brant has Down syndrome, the chances of the rest of the family having celiac are greatly reduced since it is more common to occur in people with Ds. My husband and I have the blood test forms and will do them next week when we can get to the lab and if either of us come back positive we will have our other two children tested as well :)
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