Hi I'm Katrina, wife to Colin, mom to Kristina, Brant, and Owen. This blog was created to keep family and friends updated on the goings on in our lives ... the joys and challenges of raising three children. You will often see me posting about Down syndrome awareness as our son Brant has Down syndrome.
He has celiac disease. Or at least it's very likely that he has celiac. His levels are VERY high. When the doctor showed me the results on the screen I think it said <200 or something to that effect but I'm not sure. He printed me a copy of the results but I don't think the celiac results are on it but I'm not sure, I could be way off. He is also showing low iron (probably because his intestine is not absorbing due to the celiac) and I think he said low B5? Something about the red cells being higher or bigger than expected for someone with low ferritin. The doctor was going to order another test on the blood to check something else to do with that.
ANYWAYS, so our next course of action is a referral to the GI specialist at Children's (UGH - I think I jinxed myself by being so elated that we don't have to go back there til next Nov for his next appt with the Orthopedic Surgeon!) We will hopefully hear back and get in quickly but if we have to wait more than a month we are supposed to take him off gluten until a month before the biopsy. So hopefully they can get him in quick!
So of course I would appreciate ANY info on Celiac. I know that gluten is in bread and pasta and is used as a filler in a lot of things but will labels always list gluten as an ingredient? Or if gluten/wheat is not listed as an ingredient does that mean that it is for sure gluten free? For instance, the pasta sauce I just bought, the salad dressings, the juice? I am SO GLAD I sell Epicure and that 99% of their products are gluten free! They sell spices and dip mixes and mixes to make sauces and dressings and stuff. That will be a huge help!
Wednesday, January 07, 2009
Subscribe to:
Post Comments (Atom)
2 comments:
Check out this blog - I'm sure it will help! http://glutenfreegirl.blogspot.com/
Also, talk to Amanda Penner. And I'll be praying for guidance for you too!
Dyan
I wish I knew how different the Canadian labeling laws were. If it says modified food starch without providing the source of the starch then avoid it. MOST foods that are truly gluten free are now labeled as such, but sometimes that g/f label is in a weird spot, hard to find. If you have a whole foods there, they will give you a tour of the store and show you all the g/f products they carry. One of our krogers actually has little labels on all the shelves of g/f products.
If it says vinegar, it needs to be distilled vinegar. Carmel color is generally not okay unless it's from a company who lists gluten as such.
I know it's overwhelming at first, but you will soon know the products you like and that Brant will eat and it will be routine.
HUGS
Post a Comment